Resources and Support

There are many unknowns surrounding the diagnosis and treatment of hydrocephalus and adult-onset normal pressure hydrocephalus (NPH).

Patients and caregivers are encouraged to ask questions, gather information, and network with others who have experienced similar challenges. Learning about symptoms, diagnostic testing, treatment options, and what to expect can help patients and families feel more informed and prepared throughout their care journey.

Because every patient’s experience with hydrocephalus is different, it is important to work closely with a healthcare professional to understand individual needs and determine an appropriate approach to care.

Hydro Resources

Patients:

Hydrocephalus Association
4340 East West Highway Suite 905
Bethesda, MD 20814-4447

Phone: 301-202-3811
Toll-free: (888) 598 3789
Fax: 301-202-3813
www.hydroassoc.org

Medical:

American Academy of Neurology
201 Chicago Avenue
Minneapolis, MN 55415

Phone: (800) 879-1960
Fax: (612) 454-2746
www.aan.com

American Association of Neurological Surgeons 
5550 Meadowbrook Drive
Rolling Meadows, IL 60008-43852

Phone: (847) 378-0500 or (888) 566-aans (2267)
Fax: (847) 378-0600
[email protected]
www.neurosurgery.org or www.aans.org